Understanding the Bariatric Patient Perspective in the National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study
BACKGROUND: In 2016, the Patient-Centered Outcomes Research Institute funded the National Patient Centered Clinical Research Network (PCORnet) Bariatric Study (PBS). Understanding the experience of postoperative patients was a key component of this study.
METHODS: Nine focus groups were conducted in Southern California, Louisiana, Pennsylvania, and Ohio and in a national advocacy conference for patients with obesity. Participants were identified and recruited in both clinical and community settings. Focus group transcripts were analyzed using an iterative inductive-deductive approach to identify global overarching themes.
RESULTS: There were 76 focus group participants. Participants were mostly women (81.4%), had primarily undergone gastric sleeve (47.0%), were non-Hispanic white (51.4%), had some college education (44.3%), and made $100,000 annual income or less (65.7%). Qualitative findings included negative reactions patients received from friends, family, and co-workers once they disclosed that they had bariatric surgery to lose weight; and barriers to follow-up care included insurance coverage, emotional and situational challenges, and physical pain limiting mobility.
CONCLUSIONS: These findings confirm the other qualitative findings in this area. The approach to bariatric surgery should be expanded to provide long-term comprehensive care that includes in-depth postoperative lifetime monitoring of emotional and physical health.
Coleman, Karen J; Schlundt, David G; Bonnet, Kemberlee R; Holmquist, Kimberly J; Dunne, Jennifer; Crull, Elizabeth; Hanaoka, Beatrice Y; Lent, Michelle R.; Nadglowski, Joe; Sylvia, Louisa; Venkatachalam, Shilpa; Xanthakos, Stavra A; Zeiger, Roni; Arterburn, David; Williams, Neely; Courcoulas, Anita; Anau, Jane; McTigue, Kathleen M; Blalock, Cynthia; Malanga, Elisha; McClay, James; McBride, Corrigan L; Schlundt, David; Emiliano, Ana; Nemr, Rabih; McTigue, Kathleen; Courcoulas, Anita; Xanthakos, Stavra A; Michalsky, Marc; Coleman, Karen J; Murali, Sameer; Tavakkoli, Ali; Desai, Nirav; Apovian, Caroline; Clark, Jeanne; Nauman, Elizabeth; Cirielli, Elizabeth; Nadglowski, Joe; St Clair, Tammy; Tice, Julie; Vitello, Joseph; Zeiger, Roni; Arterburn, David; Anau, Jane; Janning, Cheri; and Williams, Neely, "Understanding the Bariatric Patient Perspective in the National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study" (2020). PCOM Scholarly Papers. 2043.