Development of a Resource Guide for Parenting Children That Survive Pediatric Brain Injury

Date of Submission


Degree Type


Degree Name

Doctor of Psychology (PsyD)



Department Chair

Robert A DiTomasso, PhD, ABPP

First Advisor

George McCloskey, PhD

Second Advisor

Virginia Salzer, PhD

Third Advisor

Thomas Massarelli, PhD


The current study examined the need for various types of information currently desired by parents and caregivers caring for a survivor of pediatric traumatic brain injury, arteriovenous malformation, and/or acquired brain injury. Review of parent comments on websites dedicated to pediatric brain injury survivors and the personal experiences of the researcher were gathered and analyzed. The analysis indicated that there is a need for offering a concise, simplified, and comprehensive educational source of information for parents and caregivers and the child survivors of brain injuries. It was determined that a guide for parents should include as much information as possible to help parents and caregivers provide care for their child, maximize the use of available resources in the community, and be aware of and address their own self-care needs. The study concluded with the presentation of the content of a resource guide for parenting children that survive pediatric brain injury.

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